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All Hands on DRESS: a conversation with Elisama Dias, founder of DRESS Brazil Institute
For National DRESS Syndrome Day, we speak with Elisama Dias, founder and director of Instituto DRESS Brasil. We learn about what drove her to form the Institute and how the organization is filling a DRESS Syndrome advocacy gap in Brazil.
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All Hands on DRESS: The patient perspective with Anna Marie and Elizabeth Harkins
Anna Marie is a pediatric DRESS Syndrome survivor. This is her story. All Hands on DRESS is a call to action urging federal research funding of severe cutaneous adverse reactions (SCARs) like DRESS Syndrome.
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All Hands on DRESS: The patient perspective with Jeremy Sauer
DRESS Syndrome survivor Jeremy Sauer shares his story of developing DRESS and the challenges and surprises of having the life-threatening disease
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All Hands on DRESS: The patient perspective with Dr. Shaquita Bell
DRESS Syndrome is an under-researched, life-threatening disease. In this blog, Dr. Shaquita Bell shares her story of developing and ultimately surviving DRESS Syndrome. This blog is part of the series All Hands on DRESS, which is a call to action for Congress to dedicate research funding for severe cutaneous adverse reactions (SCARs) like DRESS Syndrome
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The Wearable Advocate: Why Having a Medical ID Is Vital for People With DRESS Syndrome
For people with life-threatening conditions like DRESS Syndrome, having a medical ID is an easy and powerful step to take to help protect your health, and ultimately, your life.
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5 Things I Wish Iād Known Before DRESS Syndrome Turned My Life Upside Down
DRESS Syndrome can change people's lives, often unexpectedly. DRESS survivor Christina Ledford shares personal insights into what she wishes she had known about DRESS Syndrome
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The Doctor Said DRESS Syndrome Was Rare ā But I'm Living It
My reaction to the medication modafinil started as a rash. Not an itching one, but a burning one ā like a sunburn hiding under my skin. I felt pain, acute pain, and I was medically dismissed. Even when the fever followed and nothing brought it down, the medical response was the same: minimal testing, patronizing words, and a conviction that I was just being hysterical.
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Introducing DRESS Support Meetups: A Gathering for DRESS Syndrome Patients and Loved Ones
We're excited to launch DRESS Support Meetups, our new meeting series to connect DRESS Syndrome patients and loved ones.
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BBC Reports About DRESS Syndrome in Iranian Actress Taraneh Alidoosti
Translation of BBC Instagram post of DRESS Syndrome after news emerged that Iranian Actress Nazanin Motamedi has developed this condition.
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Deepening DRESS Syndrome Understanding and Awareness at 2024 AAAAI
Read about research highlights and key takeaways from our attendance at 2024 AAAAI
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Join Us for GivingTuesday and Raise Awareness About DRESS Syndrome
Learn how you can support DRESS Syndrome advocacy and awareness during GivingTuesday
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