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What is National DRESS Syndrome Day?

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On July 16, we recognize this day worldwide to build awareness of DRESS Syndrome and honor patients who’ve experienced this severe drug reaction. Our goal is to unite our global community — patients, loved ones, and medical and research professionals — while recognizing those whose lives have forever changed as a result of this life-threatening disease.

Our 2026 Theme: All Hands on DRESS

logo for National DRESS Syndrome Day and the theme of All Hands on DRESS

“All Hands on DRESS" is about driving action to better understand — and ultimately — prevent DRESS Syndrome. 
 

It’s about supporting …

  • patients' urgent need for prompt understanding, diagnosis, and treatment

  • caregivers and loved ones with their emotional and physical loads

  • researchers with dedicated funding that helps them to better understand DRESS and related severe drug reactions
     

Every day around the world, people are experiencing the devastating effects of severe drug reactions like DRESS Syndrome. And each year, people are being harmed and losing their lives from this under-researched and misunderstood condition.

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To date, no dedicated funding stream exists in the National Institutes of Health (NIH) or the Food and Drug Administration (FDA) for research into severe cutaneous adverse reactions (SCARs), including DRESS and Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis (SJS/TEN). 

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Our goal is to change this outcome. To do so, we need All Hands on DRESS!

How You Can Get Involved

Join us this July 16 and help us spread awareness about DRESS Syndrome. You have various ways to get involved! #AllHandsOnDRESS

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Sign our petition for federal funding of research into severe drug reactions like DRESS

It's time to act and tell legislators in Washington D.C. that we need dedicated SCARs research funding at the NIH and FDA. 

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Write a letter to your Congresspersons

Urge your Senators and Representative to take action into creating dedicated federal funding for SCARs research. Use this tool to find your legislators.

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Wear the color purple

Wear our awareness purple color to unite with our community. Take a picture and share it online with #AllHandsOnDRESS. You can also wear one of our awareness shirts and other swag.

 

**Depending on when you order your swag, it may or may not arrive in time for National DRESS Syndrome Day. Be sure to check shipping times before you order.**

Nominate your 2026 DRESS Hero

DRESS Hero is our annual awards event where we celebrate medical professionals from around the world who excel at treating and caring for DRESS Syndrome patients. Nominations come from patients and loved ones. Nominate your DRESS Hero

DRESS Syndrome awareness ribbon that is dark purple with gold font that says DRESS Syndrome Awareness and a gold butterfly on the bottom of the ribbon

Use our DRESS awareness ribbon

​Spread the word about DRESS Syndrome by downloading and using the awareness ribbon. Include it in artwork and designs. Post on social media. Share why raising awareness matters to you.

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Register your case of DRESS Syndrome

Registering your case is another way you can help the medical and research communities better understand this relatively unknown disease. Register with us.

Share your personal DRESS story

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One way we educate people about DRESS Syndrome is by sharing stories from patients who have experienced this debilitating condition. Your story helps people understand how the medicines we take can sometimes hurt us — and the prompt, critical, and collaborative care patients need to overcome and survive this illness. Share your personal DRESS story with us!

In Loving Memory

Most people will recover from their DRESS reaction. However, an estimated 10% of people will not survive this disease. Join us in honoring the individuals from around the world who lost their battle with DRESS Syndrome — as well as everyone who is unspoken and unnamed.

Support our mission

Your gift helps patients and families facing a life-threatening drug reaction. 💜

Proudly recognized: nonprofit

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Participate

Help improve understanding of DRESS. Register your case of DRESS Syndrome

Follow us on social media:

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Stay connected: Receive updates on research, education, and patient support.

 

Listen to our podcast:

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Contact us

Get in touch with our Foundation. We're here to help.

DRESS Syndrome Foundation is a 501(c)(3) nonprofit organization founded in 2020.​

 

Tax ID (EIN): 84-3088907

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info@dresssyndromefoundation.org

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© 2026 DRESS Syndrome Foundation. All rights reserved.

Legal: This website is for information purposes only and is not intended to diagnose or treat DRESS or any other type of disease. Every patient’s situation is unique. We are a patient advocacy organization and are not medically trained. Never disregard professional medical advice or delay seeking it because of something you’ve read on this site. In the hope of creating better awareness, we encourage you to share what you learn here with your medical team and others. If you think you may have a medical emergency, call your doctor or 911 immediately.  

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