Learn more about DRESS Syndrome
We offer comprehensive resources to help you learn more about DRESS
Syndrome. We also share guidance to help you understand how DRESS is diagnosed and treated by medical professionals, what questions to ask your medical team, as well as what to expect during recovery and long-term follow-up.
And keep up with us on social media where we share educational posts about DRESS (Facebook, Instagram, Twitter).
Find a DRESS-aware doctor
We do our best to help connect individuals with medical professionals whoare DRESS-aware or who have experience managing severe adverse drug reactions, like DRESS. When local expertise is limited, we may help identify clinicians with relevant experience or provide guidance to support informed conversations with your existing medical team.
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Are you a DRESS–aware medical professional interested in joining our network? Get in touch.
How We Can Help
We are a nonprofit organization providing medical advocacy, education, and support for individuals affected by DRESS Syndrome and their loved ones. We also work to advance research and awareness to improve outcomes for patients worldwide.
Here are ways we support you.
Connect with other DRESS patients
Because DRESS Syndrome is often unfamiliar and misunderstood, it can be isolating and confusing. We can connect you to other DRESS patients, loved ones of DRESS patients, and others who understand what you’re going through. They often can offer first-hand perspectives or simply give an encouraging voice when you need it most.
Submit your case to patient surveys
We help connect patient cases to relevant research that aims to deepen the medical understanding of DRESS.
Listen to our podcast
We produce a podcast dedicated to DRESS Syndrome, featuring conversations and topics focused on patient experience, clinical insights. Currently, we have 11 episodes available, with additional topics in development.
Guide you on DRESS conversations
Knowing which questions to ask and the options available to you can be challenging when you or a loved one is experiencing DRESS. We’ll talk with you and guide you on how to best have productive conversations with your medical team.
Have an advocate
Sometimes, you may find that having an advocate to meet with your medical team can help you deepen the conversations you have. When appropriate and with your consent, we’re happy to help communicate with a physician or another medical professional to support you during your DRESS event.
Please Note: As a patient advocacy nonprofit, we’re happy to connect DRESS Syndrome patients and loved ones to medical resources and information they need during their diagnosis, treatment, and recovery. However, we're not able to offer any financial assistance. Any associated medical costs are the patient’s responsibility.
What Our Community Says
Soon Fuller, DRESS survivor
The DRESS Syndrome Foundation gave me a new family — an incredibly supportive community. And I don't know where I'd be today without that.