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Braelyn is a 7-year-old girl who was diagnosed with DRESS Syndrome after starting three anti-seizure medications. It all started with rashes, high fevers, and several misdiagnoses.

Braelyn

USA

Welcome to the DRESS Syndrome Foundation
We're glad you found us.

DRESS Syndrome is a severe, cutaneous, adverse, delayed reaction from primarily taking one of over 50 medications. This life-threatening condition can cause major organ dysfunction and may result in long-term complications.

DRESS stands for Drug Reaction with Eosinophilia and Systemic Symptoms. The condition also goes by the name Drug-Induced Hypersensitivity Syndrome (DIHS).

The first symptoms of DRESS Syndrome are usually a fever followed by a rash and, often, facial swelling. DRESS symptoms can progress to severely affect organs, most often the liver, kidneys, lungs, and heart. Some of these symptoms can emerge months after the first symptoms show, meaning doctors should monitor patients for many months.

Is DRESS Syndrome rare?

While currently thought of as a "rare" condition, it is under-diagnosed and under-reported, and many doctors have never treated a DRESS patient. To date, 1 in 1,000 to 1 in 10,000 people may develop DRESS Syndrome. Many patients have been in and out of the ER, are hospitalized, and undergo many tests before receiving a DRESS diagnosis.


Fortunately, you can find a way forward.

We understand what you're going through.

You are not alone.

Prescription Drugs

At the DRESS Syndrome Foundation, we’re a collaborative network of patients, families, researchers, and physicians dedicated to supporting people experiencing DRESS. We also educate the public and medical communities about the syndrome, and advocate for advanced research and treatment.

 

Our goal is to support patients and their loved ones while deepening medical awareness. You deserve answers. You deserve to receive the treatment that helps you survive DRESS Syndrome.

 

We’re here to help.

Checklist of Common First
DRESS Syndrome Symptoms

  • Fever (38º to 40ºC)/(100º to 104ºF)

  • Skin eruption/rash

  • Facial swelling

  • Swollen lymph nodes

  • General sense of feeling unwell

Explore more details about common DRESS Syndrome symptoms. Download our Quick DRESS Facts resource.

follow this equation when suspecting DRESS Syndrome: Medication started within the last 2 to 8 weeks plus delayed reaction of fever and rash equals DRESS Syndrome. Contact your doctor immediately if you suspect DRESS!
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