Living through DRESS Syndrome often means taking high-dose prednisone — a medication that saves your life but changes it in ways you may not expect. DRESS Syndrome is a severe, life-threatening reaction to medicine that causes widespread inflammation and can damage multiple organs. To date, steroids are the first-line of treatment for DRESS, and patients typically are on them for several months.

The Register Your Case of DRESS survey has become one of the largest collections of patient-reported DRESS experiences worldwide, providing valuable insights that would otherwise be missing. These patient voices are building the foundation for future research and better care. Read more about insights learned from this survey

DRESS Syndrome can change people's lives, often unexpectedly. DRESS survivor Christina Ledford shares personal insights into what she wishes she had known about DRESS Syndrome

My reaction to the medication modafinil started as a rash. Not an itching one, but a burning one — like a sunburn hiding under my skin. I felt pain, acute pain, and I was medically dismissed. Even when the fever followed and nothing brought it down, the medical response was the same: minimal testing, patronizing words, and a conviction that I was just being hysterical.

DRESS Syndrome can deeply affect every part of a person’s life: physically, emotionally, and psychologically. Many patients find themselves feeling anxious, uncertain, or even grieving their sense-of-self and loss of safety they once had. These feelings can especially happen when taking new medications or learning to trust their body again.

From March 7 – 11, dermatologists and non-medical professionals gathered from around the world in DRESS Syndrome Foundation Executive...

We're excited to launch DRESS Support Meetups, our new meeting series to connect DRESS Syndrome patients and loved ones.

Myocarditis is an underappreciated result of having DRESS Syndrome that can quickly become fatal. Learn why to critically consider the heart

Translation of BBC Instagram post of DRESS Syndrome after news emerged that Iranian Actress Nazanin Motamedi has developed this condition.

Antibiotics, anticonvulsants, and antivirals are commonly prescribed for several conditions and illnesses. Yet, many of these widely...

Read about research highlights and key takeaways from our attendance at 2024 AAAAI

Meet Connie Stevens! Connie is Operations Advisor for the DRESS Syndrome Foundation (DSF) and also the host of our podcast, Addressing...

Meet Christopher A. Smith! Christopher has been part of the DRESS Syndrome Foundation (DSF) family since we founded our nonprofit — and...

Learn how you can support DRESS Syndrome advocacy and awareness during GivingTuesday

Learn the risks of taking antibiotics with severe adverse drug reactions (SCARs) like DRESS Syndrome and new research from Dr. John Barbieri

Meet Deanna Lorianni! Deanna joined our team in 2021 as Communications Director for DRESS Syndrome Foundation (DSF) and plays a pivotal...

This past summer, we were lucky to have Allie Crocker join our team on a variety of projects in support of our mission in helping DRESS...