Living through DRESS Syndrome often means taking high-dose prednisone — a medication that saves your life but changes it in ways you may not expect. DRESS Syndrome is a severe, life-threatening reaction to medicine that causes widespread inflammation and can damage multiple organs. To date, steroids are the first-line of treatment for DRESS, and patients typically are on them for several months.

The Register Your Case of DRESS survey has become one of the largest collections of patient-reported DRESS experiences worldwide, providing valuable insights that would otherwise be missing. These patient voices are building the foundation for future research and better care. Read more about insights learned from this survey

DRESS Syndrome can change people's lives, often unexpectedly. DRESS survivor Christina Ledford shares personal insights into what she wishes she had known about DRESS Syndrome

My reaction to the medication modafinil started as a rash. Not an itching one, but a burning one — like a sunburn hiding under my skin. I felt pain, acute pain, and I was medically dismissed. Even when the fever followed and nothing brought it down, the medical response was the same: minimal testing, patronizing words, and a conviction that I was just being hysterical.