DRESS Syndrome is an under-researched, life-threatening disease. In this blog, Dr. Shaquita Bell shares her story of developing and ultimately surviving DRESS Syndrome. This blog is part of the series All Hands on DRESS, which is a call to action for Congress to dedicate research funding for severe cutaneous adverse reactions (SCARs) like DRESS Syndrome

For people with life-threatening conditions like DRESS Syndrome, having a medical ID is an easy and powerful step to take to help protect your health, and ultimately, your life.

Living through DRESS Syndrome often means taking high-dose prednisone — a medication that saves your life but changes it in ways you may not expect. DRESS Syndrome is a severe, life-threatening reaction to medicine that causes widespread inflammation and can damage multiple organs. To date, steroids are the first-line of treatment for DRESS, and patients typically are on them for several months.

The Register Your Case of DRESS survey has become one of the largest collections of patient-reported DRESS experiences worldwide, providing valuable insights that would otherwise be missing. These patient voices are building the foundation for future research and better care. Read more about insights learned from this survey