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About Us

The DRESS Syndrome Foundation was incorporated as a nonprofit in March of 2020 — just in time for the pandemic! While we're a fairly new organization, our work began years ago. Collectively, we’ve been supporting patients and working to educate about DRESS Syndrome for over 10 years.

We know all too well that this dangerous and debilitating, severe adverse drug reaction is not well enough understood among the medical community. We also understand that patients are in desperate need of evidence-based information and reliable support.

​Our vision is to see a world where severe adverse drug reactions are predictable, recognizable, and treatable.

Our initiatives to date include:

  • Continuing to expand upon the largest existing support network for patients

  • Producing educational resources for our community including website content and podcast series with patient and expert interviews

  • Collaborating with physicians to get patients help in real-time and in crisis

  • Collecting case studies and data that will help connect patients with genetic research projects on DRESS

Get to know more about our story and mission and our leadership team.

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