About Us
The DRESS Syndrome Foundation exists to improve recognition, understanding, and outcomes for patients affected by DRESS Syndrome and related severe cutaneous adverse reactions.
DRESS Syndrome is a severe and potentially life-threatening adverse drug reaction that remains under-recognized and inconsistently managed within the medical community. Patients and families often face delayed diagnosis, fragmented care, and limited access to reliable, evidence-based information. At the same time, clinicians may lack clear guidance due to limited awareness and gaps in available research.
Our vision is to help create a world where severe adverse drug reactions are predictable, recognizable, and treatable.
To advance this mission, the DRESS Syndrome Foundation focuses on the following core initiatives:
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Expanding and supporting one of the largest patient-led networks for individuals and families affected by DRESS
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Developing accessible, evidence-based educational resources for patients, caregivers, and clinicians
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Collaborating with physicians and researchers to help patients access expert care in real time, including during acute illness
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Collecting patient-reported data and case information to support research efforts, including genetic and translational studies related to DRESS
The Foundation works in close collaboration with patients, clinicians, researchers, and partners around the world to ensure that patient experience informs research, education, and clinical practice.
​Get to know more about our story and mission and our leadership team.
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