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Find Support

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DRESS Syndrome can be complicated and frightening. Finding knowledgeable medical care can be challenging, and the experience can feel isolating.

Connecting with others who truly understand what you’re going through can make a meaningful difference.

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DRESS Syndrome Foundation–Support Meetups

Join our on-going virtual support meetups to connect with with people affected by DRESS Syndrome — including patients, caregivers, and loved ones. These meetups offer a supportive, welcoming space to share experiences, ask questions, or simply listen.​

Hosted by the DRESS Syndrome Foundation and informed by clinical expertise and patient experience.

Stay Connected with the DRESS Community

Our social media channels provide a way to stay connected to the DRESS community and Foundation updates. Although public, many people choose to engage by reading, asking general questions, or offering support.

Patient-Led DRESS Support Resources

These resources are created and maintained by patients or caregivers and are not operated by the DRESS Syndrome Foundation.

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Surviving D.R.E.S.S.

Created by Linda Wondrack, DRESS Syndrome survivor and Foundation Board Member.

A personal, patient-created resource reflecting lived experience with DRESS.

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DRESS Syndrome Support Group (Private, Patient-Led)

A private Facebook group created and moderated by DRESS patients and caregivers.

This group is independent and is not operated by the DRESS Syndrome Foundation.

Help us Expand This List
Do you run or know of a patient-led DRESS support group or resource you’d like to share? We welcome suggestions and review all submissions before adding them to this page.
Submit a resource for consideration

Still Need Support?

If you have questions about DRESS Syndrome, are looking for support resources, or aren’t sure where to turn next, we’re here to help. Reach out to us.

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Participate

Help improve understanding of DRESS. Register your case of DRESS Syndrome

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Stay connected: Receive updates on research, education, and patient support.

 

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Contact us

Get in touch with our Foundation. We're here to help.

DRESS Syndrome Foundation is a 501(c)(3) nonprofit organization founded in 2020.​

 

Tax ID (EIN): 84-3088907

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info@dresssyndromefoundation.org

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© 2026 DRESS Syndrome Foundation. All rights reserved.

Legal: This website is for information purposes only and is not intended to diagnose or treat DRESS or any other type of disease. Every patient’s situation is unique. We are a patient advocacy organization and are not medically trained. Never disregard professional medical advice or delay seeking it because of something you’ve read on this site. In the hope of creating better awareness, we encourage you to share what you learn here with your medical team and others. If you think you may have a medical emergency, call your doctor or 911 immediately.  

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