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Patient and Family Advisory Panel

Meet our Patient and Family Advisory Panelists! We are grateful for this international group of DRESS survivors and family members who have come together to help guide our mission at the Foundation. Their lived experiences with DRESS Syndrome add a unique and vital voice to our work and to those we serve.

a woman with blond hair grins sweetly

Ashley Berryhill

Parent of pediatric DRESS Syndrome Survivor, USA

a woman with short red hair grins and wears glasses with a scarf around her neck

Edith van de Bovenkamp

DRESS Syndrome Survivor,

The Netherlands

a man wears sunglasses and grins with dirt ground behind him

DRESS Syndrome Survivor, USA

a woman with blond hair smiles against a tree

DRESS Syndrome Survivor, USA

a Black woman grins and rests her head on her hand while sitting in a chair

Lebo Lekhalanyane

DRESS Syndrome Survivor

South Africa

a man with a grey mustache and glasses smiles while sitting in a car

DRESS Syndrome Survivor, USA

a woman smiles with wavy blond hair while wearing a wedding dress

DRESS Syndrome Survivor, USA

Alison squre.tif

Alison Sarnicki

DRESS Syndrome Survivor, USA

Jeremy Sauer-Patient and Family Advisory Panel.jpg

DRESS Syndrome Survivor, USA

a woman with brunette hair wears glasses and grins

DRESS Syndrome Survivor, Argentina

Parent of pediatric DRESS Syndrome Survivor, USA

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