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Robert Dillon

DRESS Syndrome survivor

man with shaved head and facial hair stubble grins and wears sunglasses

Robert lives in Las Vegas, Nevada, and is the proud father of two girls, ages 31 and 28. He graduated from the University of Tennessee and the University of Las Vegas.

 

In 2023, Robert's life was significantly altered when he was diagnosed with DRESS Syndrome, caused by Lamotrigine (Lamictal). His illness was a challenging journey, including hospitalization for an entire month, accompanied by symptoms such as a 104°F fever, a full-body rash, facial swelling, hair loss, thrush, substantial weight loss, and severe depression.

 

Robert's battle against DRESS syndrome involved multiple medical procedures, including blood work, MRIs, CAT scans, and ultrasounds, as the syndrome also attacked his kidneys, liver, and lymph nodes. The recovery phase wasn't easy either, as he continued to take prednisone and had to endure body peeling and redness for about six weeks. 

 

Determined to overcome this adversity, Robert is currently weaning off prednisone and taking positive strides toward recovery, with his strength gradually returning. Knowing how challenging DRESS can be, Robert hopes to raise awareness by sharing his story and supporting others experiencing DRESS. Robert is driven to offer hope to those facing similar battles, having personally experienced the despair associated with his DRESS diagnosis.

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DRESS Syndrome Foundation is a 501(c)(3) nonprofit organization founded in 2020.​

 

Tax ID (EIN): 84-3088907

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© 2026 DRESS Syndrome Foundation. All rights reserved.

Legal: This website is for information purposes only and is not intended to diagnose or treat DRESS or any other type of disease. Every patient’s situation is unique. We are a patient advocacy organization and are not medically trained. Never disregard professional medical advice or delay seeking it because of something you’ve read on this site. In the hope of creating better awareness, we encourage you to share what you learn here with your medical team and others. If you think you may have a medical emergency, call your doctor or 911 immediately.  

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