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Life with DRESS Syndrome

Wed, Apr 02

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Virtual Meetup

This informal meeting gives you a chance to connect with DRESS patients and loved ones. Discuss how having DRESS Syndrome has affected your life. Swap stories. Ask questions. And deepen your community and understanding of this life-changing disease.

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Life with DRESS Syndrome
Life with DRESS Syndrome

Time & Location

Apr 02, 2025, 6:30 PM – 7:30 PM EDT

Virtual Meetup

Guests

About the event



Life With DRESS Syndrome


DRESS support meetups, featuring a purple awareness ribbon for DRESS Syndrome

We understand that living with DRESS Syndrome can be challenging. Patients often face complex symptoms and complicated treatments that can take a toll. This experience can lead to loneliness and isolation, fear of taking medications, distrust of medical providers, and even PTSD.


In our first DRESS Support Meetup, we'll come together over Zoom in an informal setting to discuss what living with DRESS is like. Whether you're a new patient, in recovery, or a loved one, you'll find community and connection while uniting over your shared experiences.


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Help improve understanding of DRESS. Register your case of DRESS Syndrome

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Contact us

Get in touch with our Foundation. We're here to help.

DRESS Syndrome Foundation is a 501(c)(3) nonprofit organization founded in 2020.​

 

Tax ID (EIN): 84-3088907

info@dresssyndromefoundation.org

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© 2025 DRESS Syndrome Foundation. All rights reserved.

Legal: This website is for information purposes only and is not intended to diagnose or treat DRESS or any other type of disease. Every patient’s situation is unique. We are a patient advocacy organization and are not medically trained. Never disregard professional medical advice or delay seeking it because of something you’ve read on this site. In the hope of creating better awareness, we encourage you to share what you learn here with your medical team and others. If you think you may have a medical emergency, call your doctor or 911 immediately.  

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